I’m back in Durham, got in today.

Pat has not being doing as well as we hoped. She had real good day a week ago (a day after surgery), and now is non-responsive, basically sleeping, although she can be fed (Dad fed her today), She doesn’t open her eyes when being fed.

She starts radiation/chemo tomorrow, good news she doesn’t need to be awake. They have taken her NG tube out that was used for feeding (nasogastric) , it had been in too long. If she can’t be fed orally or eat on her own, they will have to put in a direct stomach one (hoping not).

The permanent CF shunt they put in is adjustable, they made an adjustment last night to increase the drain rate and lower pressure on her brain, and we are hoping it helps. Part of what we are hearing is she is awake at night (non verbal, but awake) and sleeping during the day.

Other news, is they are working towards getting her back to the convalescent home for rehab. That could happen as early as this weekend or early next week , depending on her condition.

Thanks for you support,

Scott