That might sound trivial, but it is not. Pat has been placed on pureed foods after she stopped accepting food, and what follows is a visit from speech therapy to make sure she can swallow OK. We have been though this numerous times, but it meant a lot to me that I was able to feed her lunch today and that she let me. This is the first time in a few days that she has eaten.
She has also been taken off using a straw to drink liquids, as she has difficulty drawing the liquid up the straw, in it’s place is a “sippy” cup , one of those used by young children. It works, and she was able to take in some liquid.
Scott
Ohhhhhhhhhhhhh Scott
u r right – it is not trivial!! Thanks for keeping us updated on what is happening
Scott, It is with sadness and admiration that I read your blogs. Sadness for your suffering, admiration for your courage and Pat’s tenacity in holding on to the life she shares with you. We are not across the street, but you are both in our thoughts and prayers.
Fondly.
Linda & Dan.
Bright spots are never trivial! Glad to hear Pat had a good day.
Whilst it is a very difficult time, it must be a huge comfort to have Pat let you feed her. We are following you all the way over here in England and only sorry not to be closer. Pat is very lucky to have your love and commitment, I can only guess at how hard this has been on you. I know we have not met but I thank you for everything you are doing for my lovely cousin. Sending you love and support Liz and family xxx
Dear Scott,
We can understand how important this is to you – an acknowledgement for your support and a link to holding on to her life. What you and your parents have done to show your love and make Pat comfortable is remarkable. We are thinking of you with much love. Our best regards to your parents, too. Etta and Arthur