I wish I did. Pat’s last meal was when I fed her (see previous post) . She currently is comfortable but will not take in food or water. She was started on clysis, a form of hydration that is sub-Q as opposed to IV about 4 days ago. That is now being discontinued in fear of overloading her.

She is non responsive and sleeps 98% of the time, the nurses are unable to give her oral medications as she will not open her mouth or swallow.

I tried numerous times to get her to drink or eat, however I am now in fear of generating greater discomfort, as we all are.

Thanks for all your support

Scott

 edit: I meant to add, all the staff at the home, and my parents, have tried to rouse her and feed her, or get her to take some food or medication. We are extremely worried about her swallowing and aspiration, which would make thing much worse for her comfort. It was not solely “I” in this effort.

That might sound trivial, but it is not. Pat has been placed on pureed foods after she stopped accepting food, and what follows is a visit from speech therapy to make sure she can swallow OK. We have been though this numerous times, but it meant a lot to me that I was able to feed her lunch today and that she let me. This is the first time in a few days that she has eaten.

She has also been taken off using a straw to drink liquids, as she has difficulty drawing the liquid up the  straw, in it’s place is a “sippy” cup , one of those used by young children. It works, and she was able to take in some liquid.

Scott

…And this a condition of her disease. I got a call Wednesday morning that she was refusing food. They asked if  I wanted to have her sent to the ER or treated at the home. I elected to have her treated at the home. The last time at the ER  they were having a hard time coming up with a reason to admit based on her condition, (brain tumor) , and I understand the thought process.

In the last few days, Pat is not eating, and a version of hydration has been brought in, not IV , but IM. She has been able to ingest a few of her oral meds, the ones I pushed for , for seizure and a steroid to reduce swelling on the brain. There is also some questions about possible pneumonia , etc. and they are trying to treat them.

Her condition appears to be comfortable, sleeping almost all of the time now. Attempts to rouse her are very difficult if not impossible.

I and all those around her are just shooting for her comfort.

Scott

As always, thanks for your support

Pat’s condition has not changed very much from my previous post. She may or may not recognize anyone. I fed her today which went well. We all do not know what she recognizes or thinks , its a mystery. But we are doing all we can, to make her comfortable.

I still recommend that this is not a good time to visit, please remember Pat the way you knew her. I also do not expect any improvement in her condition, which is normal with the disease she has.  She has fought very hard.  

Thanks ,

Scott